My Kidney Journey

I don’t remember much about the room, or the words said. I vaguely remember the doctor explaining which gene was mutated but it has been too long for me to recall what exactly was said. I was just 12 years old when they told me. To be honest I hadn’t even thought it was a possibility to that moment, and hadn’t quite built up the concentration to take in anything. That day 13 years ago now was the day I was told I had Polycystic Kidney Disease.

For the first year of two I had little awareness of the consequences of such a disease, it just made me different; maybe even a little bit interesting. It wasn’t until my Dad’s own journey through his own battle with Polycystic Kidney Disease, an inherited disease that I began to understand what it was. Many tumultuous years later he got the transplant he so desperately needed but the healing process did not end there. Are lives have been forever marked by Polycystic Kidney Disease and there is no getting around that.

I have never been angry or upset over my diagnosis. There has never been any blame or hurt. I would not say that I am pleased to have but it is just another reason that I am strong this day. Knowing what my future might hold; dialysis, transplant, endless doctors appointments, endless medications and feeling weaker and weaker with each day; has made me come to really appreciate life.

This day I am going to call for you to check your lifestyle and how it might be affecting your kidneys, not something we think about often but something that I would insist you change. Your kidneys could be your silent killer. Here are some 8 golden rules to kidney health from the people at World Kidney Day, click here if you would like any further information:

  • Keep fit and active
  • Keep regular control of your blood sugars
  • Monitor your blood pressure
  • Eat healthy and keep your weight in check
  • Reduce salt intake
  • Maintain healthy fluid intake
  • Do not smoke
  • Do not take over the counter pills on a regular basis

Lets all face tomorrow aiming to make our lives a little healthier and work towards protecting those kidneys. I want to finish todays post with the Lord’s prayer. I may have not been a Christian when I found out that I had kidney disease but this was the most comforting thing for me during the difficult times.

“Our Father, who art in heaven,
hallowed be thy name;
thy kingdom come;
thy will be done;
on earth as it is in heaven.
Give us this day our daily bread.
And forgive us our trespasses,
as we forgive those who trespass against us.
And lead us not into temptation;
but deliver us from evil.
For thine is the kingdom,
the power and the glory,
for ever and ever.


1 Comment

  1. Hi little one thank you so much for never blaming me for the disease, although I do feel guilty for passing it on, it means so much to me that you don’t ever point your finger at me, you are amazing xxx


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s